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Julie Patterson is the founder and lead consultant at Silver Creek Strategies closing public health gaps through technical assistance, strategic community partnerships, and training. She is also adjunct instructor for both the Mandel School of Applied Social Sciences and the Master of Public Health Program in the School of Medicine, at Case Western Reserve University. Ms. Patterson has been advancing public health for over 20 years, with a focus on HIV, women’s health, and adolescent health. She is currently a member of the PxROAR team of advocates with AVAC: Global Advocacy for HIV Prevention; chair of the Case Medical Center/ University Hospitals’ AIDS Clinical Research Site’s Community Advisory Board (CAB); and a former chair of the Cuyahoga County HIV Prevention Regional Advisory Group. She is a trusted community partner with a commitment to excellence and participatory, solution-driven results.
Presentation: Sharing Your Voice: Tips for Busy Research Advocates
Time: Breakout Session 2
With the rapid pace of innovation in HIV prevention, treatment and cure research, the role of advocates has become even more pronounced. Research evidence can be critical to empowering and organizing communities who face many life challenges in addition to HIV. Advocacy includes learning about the most current, relevant medical and behavioral research with a goal of translating that research into practice and policy change. To become advocates, community members must be empowered to conduct a mutual dialogue with researchers and policy makers from a position of equality and strength. This session is designed as an interactive roundtable where advocates will share case studies and examples from their experience conducting HIV research advocacy. Participants will gain and share insights about particular strategies, including: mobilizing for community events and workshops about HIV research; approaches for fostering communication and collaboration between researchers, organizations and advocates; effective research dissemination and translation; gently stretching the boundaries of traditional social support; and engagement models and best practices. The session assumes basic familiarity with the terminology and recent developments in HIV prevention and treatment. The goal of the workshop is skill building for community engagement, research translation, and advocacy.
1. Participants will learn to describe research advocacy and identify specific advocacy strategies around HIV research.
2. Participants will increase their debate skills around concepts, principles, and practices related to stakeholder engagement in research.
3. Participants will examine case studies and respond with potential Good Participatory Practice (GPP) strategies for engaging stakeholders in the design, conduct, and outcome of HIV-related clinical trials.